The beginning of danger!

We didn’t realise that by giving him the middle name of “Danger”, just what we were instore for.  It seemed that his fate was written in the stars, before we even knew it! It was September 2011 and I had given birth via emergency C-section at 3am.  I also didn’t realise how poignot 3am a…

A book?!

A book?!  But I don’t even read books, how can I write a book, where will I find the time? Will anyone what to even read it? Apart from the slight anxiety I feel from the above – I do have another new chapter! Our Secret Sex Life.  The end.   It will be a…

It is time for a change!

it is time for a change – just because we love change and are very good at it 🙂 Loving Danger was a name that I chose with the lead up to Mikey’s surgery.  Now that we are on the other side of his surgery, I feel that now it’s time to change the site…

And just like that, he no longer eats blue loo!

Where does the time go! It’s been a big 7 years, and this one, 2018, has been particularly noteworthy. It seems like only yesterday he was digging into a jar of vegemite on the cream coloured carpet in our rental property, to chewing on tablets of blue loo.  Nowadays, you’ll see him more discerning with…

It could be worse.

Four words most parents of children with disabilities get fed up of hearing. With every right, too. ‘It could be worse’ Who decides for us what is enough, what we need and what we should be grateful for? I only had to prove in the past 7 years, repeating myself over and over again, that…

They day we divorced from epilepsy

The day of the divorce was a beautiful day in Brisbane.  The sky was blue and cloudless. The sun was shining bright and the city had a slight buzz as it was beginning to wake up to start its busy day. As we walked across to the hospital, we had a feeling of anticipation, for…

Ever get the feeling you are living 2 lives?

Do you ever feel that sometimes you live two lives? I do. Just the thought of living 2 lives is tiring.   Some days I barely feel I’m doing a good job in this one, how could I live a 2nd one?! It’s only recently that I’ve really thought about this – that it’s like i’m…

Conversations with a nonverbal child

Mikey is quite the chatterbox, yet for all intents and purposes he is still labeled ‘as non verbal’.  I guess when it comes to the technical definition of verbalisation, he is unable to express himself the way a typical person can.  Instead, he uses a combination of single words, gestures, sign language and PECs. The…

The little things

The other day fb popped up a photo I hadn’t seen for a while.  It was a 6 year old photo of when Mikey first became sick.  He was sitting up in his highchair with his little lopsided smile, which at the time, we thought was caused by a stroke.  He was out of ICU…