Untitled

The internet can be a great place, it's where families connect, friendships reconnect and friendships are formed. It's where parents of children who have rare syndromes and disabilities can find understanding and compassion by others that are facing similar situations to themselves. It is hard enough to parent a child with a disability in the …

Continue reading Untitled

And just like that, he no longer eats blue loo!

Where does the time go! It's been a big 7 years, and this one, 2018, has been particularly noteworthy. It seems like only yesterday he was digging into a jar of vegemite on the cream coloured carpet in our rental property, to chewing on tablets of blue loo.  Nowadays, you'll see him more discerning with …

Continue reading And just like that, he no longer eats blue loo!

Ever get the feeling you are living 2 lives?

Do you ever feel that sometimes you live two lives? I do. Just the thought of living 2 lives is tiring.   Some days I barely feel I’m doing a good job in this one, how could I live a 2nd one?! It’s only recently that I’ve really thought about this - that it's like i'm …

Continue reading Ever get the feeling you are living 2 lives?

Conversations with a nonverbal child

Mikey is quite the chatterbox, yet for all intents and purposes he is still labeled 'as non verbal'.  I guess when it comes to the technical definition of verbalisation, he is unable to express himself the way a typical person can.  Instead, he uses a combination of single words, gestures, sign language and PECs. The …

Continue reading Conversations with a nonverbal child