Media & Research

For research papers on HHE – please follow here:

Media posts:

Over the years,  I have and will continue to try and bring awareness to rare disease and disability – as the two go hand in hand with HHE Syndrome.

Thank you Big Rigs Australia

Thank you Gold Coast Bulletin – Coles Special Needs Trolleysot

Thank you MamaMia – MamaMia Article


Partners with the Hemiconvulsion Hemiplegia Epilepsy International Foundation

Thank you Rare Connect, EU for setting up the first Patient Support Page for HHE Syndrome.

HHE Patient Page

Thank you to – CPL Magazine and Take 5 Magazine